I knew that if I decided to have children, there would be a 50% chance they would end up with the same genetic seizure disorder I had as a baby and young child. Lucky I have grown out of it. For this reason, I decided to go through froedtert to have my daughter because I would deliver at children's hospital and when I was a baby with this condition that presented when I was only a day old, my parents chose children's hospital to care for me. Sure enough, my sweet girl was born with the genetic disorder. Like me, she had her first seizure when she was a day old. She spent a week in the NICU while the doctors got her managed on her meds and made sure they checked her from head to toe. Being a first time mom and of course having just given birth, I was a complete hot mess. Even though I know she could have this, it was extremely hard to see my sweet baby having health problems. The staff at children's hospital and even the staff in the mom and baby unit were amazing to my fiance, my family and I through every step. Her dad and I were able to stay one extra night in the mom and baby unit even after I was medically discharged to stay close. The nurses and doctors in the NICU were amazing! They not only took care of my daughter, the nurses were really there for me too. They were extremely supportive to my family and I. I know my daughter wasn't as sick as so many other children there but we were given an exceptional level of care. She also had to be admitted two more times after that before she was even a month old. Once for breakthrough seizures and once for a nasty respiratory virus that was going around. Again, we got exceptional care both of those times! Our little girl is now a healthy and happy 20 month old. Her seizure disorder is under control and has been since she was a couple of months old. She also sees her neurologist at children's.
CAUTION - ask ahead of your visit if they will bill as a "consult" or an "office visit." Insurance coverage is less on a consult and ultimately your bill will be tremendously higher if the specialty group charges as a consult. Good doctors but we have had a poor experience in billing practices.
It took an email for pulmonolgy to take my concerns seriously. There is a lack in communication between staff and doctors. My son has CF and doing well however concerns and questions about a vital part of his care was ignored and as of a result his infection increased. I am not yet pleased. It took a lengthy email to get an explanation and apology. And open the doors of communication. Now that iv complained now they are willing to take his health more serious and not underestimate anything. Wow!
As a mother with a child with a life threatening illness CHW is thee BEST hospital in the state! The staff is warm and welcoming, accommodating and just great to work with. Every clinic has been amazing to us.
It is insane to me that a place who deals with children, therefore mothers and families who are going through a lot, there lack of TRAUMA INFORMED CARE is disgusting, and their respect is disgraceful, I believe if the people who donated to this hospital knew the care the doctors were giving to CHILDREN and their families, they would find someone better to invest in. The commercials and care they PREACH is highly misguided. We have been forced to use this hospital, due to it being one of two in the state that can care for my daughter due to her age and risk. On Friday I was told by the manager in the renal department ‘ I know this sounds bad but kids are sicker than yours and they come first’, among other direct quotes saying how was her doctor when she retired supposed to contact all 100 patients, leaving me again feeling because my daughter is maintaining living on a steroid for life, we shouldn’t try anything new to get her into remission. Also some of her blood work came up missing and again the manager tried a quick fix , and telling me that she already told me what it was , upon looking into it, it’s still just ‘missing’. My daughter is five and has been on a steroid everyday for the last four years, she was supposed to be on it for a month. No one reviewed or attempted any thing else through your four years here. And the requests for other options were left unanswered. I would instead move out of state and find a doctor who doesn’t just see her as another child, and cares. Because this whole disease has affected my daughter physically and emotionally, and they have too many kids on their caseloads to care unless , she is ‘sick enough’ in their eyes. In my eyes her stomach 5 times the size it was when we started, her not being able to walk for long distances due to pain throughout her body and her inability to fit in with kids her age, has led to bullying and self esteem issues in kindergarten! So I understand to them she may not be sick enough, to me , she is.
(When she started on the left, and on the right, with her stomach swollen and her back pain increasing)
Helping save my sisters life from lopus THANK YOU!!!!!
I love this hospital! Saved my life when I was 12 from a boating accident that ultimately cost my leg being amputated. They kept me alive and I am forever grateful! Thank you flight for life! Y'all saved my life!
I took my 8yr old daughter into the ER because she was complaining of nausea and then fainted. ER doc diagnosed as "vasovagal syncope" and said "sometimes these things happen and we don't know why." Sent us home with a zolfran even though my daughter was still complaining of nausea and dizziness. After another 3 days of on and off symptoms, the school nurse decided to look in her ears. AND SHE FOUND A PIECE OF FOAM. I started a complaint with CHW's ER and their review board stated that the examination was "appropriate" even though the doc did not look in my daughter's ears. I would think checking ears would be standard in a child complaining of dizziness but apparently CHW does not believe in a basic exam, even when merited.
I normally don't rate anything 5 stars but the way they treated my daughter and two very nervous parents was beyond exceptional. Everyone was personable and was very patient.
All the doctors are amazing. I have had so much trouble with the billing department. The doctors recommended whole genome sequence testing. They were seeing if my insurance would cover it, a month later I had to call and they told me my insurance doesn't cover it. After calling the insurance they said all they did was call and ask but they could of submitted a appeal. My daughter wasn't important enough for them to at least try to appeal it. After going to the doctor to force them to appeal a week later it was appproved. Then I got a 1000 bill for a procedure that they did that my insurance didn't cover. I was shocked because I have an enhanced PPO and have had no problems. After doing a little digging my insurance company told me that the codes were wrong. She got a swallow study test and they put that her diagnosis was a blood disorder. Clearly I didn't get the test for that it was because my daughter was having trouble swallowing it. Every time I called the billing to review it or appeal it they were so rude. One told me they did appeal it twice, but I never got a denial letter. Then they said they reviewed it and the codes were right. They talked to me like I was stupid. What does a swallow study have to do with a platelet disorder. Then I conference called them with the insurance and it was a different story. How often does your insurance company try to help you so I don't have to pay out of pocket and the hospital does nothing. My daughter has so many issues and we have so many medical bills. This has been such a financial burden and everybody has worked with me but this hospital. Please people check your bills because there are many mistakes. They don't know how to bill the insurance and put no effort into it. After I get the whole genome testing back I will have nothing to do with this hospital. It's disgusting how I've been treated by the billing department.